Back and Better than… Well just better!

2007 February 9
by adelecaelia

I know all of your have been super heart broken from my absence from the internet, but I’m back, and although I am not totally patched up, I am at least rare disease free (that sounds really bad). So no it wasn’t Cushings… yay me! Yes I do still have a tumor, but they are looking into a way to deal with that without having to surgically remove it! I know I sound excited, but I am still not sure if it is better to just remove it or not.

I just had more blood work done last week and now I am on steroids. Athletes and scrawny men everywhere pay big bucks for these, but I’m so cool with my new tumor that I get them for free! LOL…. yeah I know that isn’t good. So anyway I take these new meds for a week four times a day and then I go back and get more bloodwork. I have had so much bloodwork this month that I now have more holes in my arm than a heroine addict!

Ok, so these steroids have some very odd side effects. Two of the top listed were insomnia and severe mental and personality changes (if gets too severe contact your doctor immediately). This sort of scares me… I mean what exactly is too severe? Am I going to turn into the Hulk and start bashing everything around me?

Have I had any side effects so far? Well the first day of taking them of course that night I could not sleep. I knew I was going to get that one as I have trouble sleeping most nights anyway… too many gnomes and pixies running around in my head all trying to find a place in my world of fantasy. Ok so I was laying there not sleeping arguing with this gnome about being featured in one of my stories, and suddenly I felt so sad that I started crying… no reason. Then about an hour later I was chuckling. I figure it was the first night so my body has to adjust.

I did not sleep but maybe an hour that night and woke up at 4:30am ready to get up for my day. These symptoms went on for 2 nights. I got a lot of work done around the house! I also started my own business! Maybe I won’t want to give these up! Now I am on day four of the meds and I am not having any mood changes, but I am still getting up earlier by a few hours. This is good for me because I always felt sick and tired before and would have to force myself to get up and after any activity I was feeling sick and exhausted.

So now what? I go back next week after seven days of pills and get more bloodwork to see if they did anything to the excess hormones the tumor is putting out. It will be nice to be on the next step of this, but I hope I don’t start feeling all sick and exhausted again after I no longer have the meds.

That was way too long! Sorry guys! Anyway, thank you all for your kind comments and support! New gaming blogs coming soon!

4 Responses leave one →
  1. 2007 February 9
    Wilhelm2451 permalink

    Glad to hear things are looking up for you and that you are back with us!

  2. 2007 February 9
    Manders permalink

    Yay for being disease free! That really sucks that you are not sleeping well. On the plus side, you are getting things done. And no, you are definitely not having the mood changes. You’ve been your same usual crazy self every time I’ve seen you! Keep us posted! SEE YOU FRIDAY!!!

  3. 2007 February 11
    Adele Caelia permalink

    Well there was the incident where I accidentally wore two completely different shoes to Taco night… but I don’t think that had anything to do with the meds…

  4. 2007 February 11
    Chris permalink

    There is nothing wrong with wearing 2 different shoes. I do that all the time. A right shoe and a left shoe. Each one is unique in its own special way. Kinda like people, but not quite.

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